These tumors are quite rare. It may be hard to find a doctor with experience in treating them. If you've been diagnosed with a pineal tumor you may want to see another doctor to get a second opinion. This may help you better understand your treatment options and feel good about the treatment choices you make.
The treatment for your pineal tumor will depend on the size, location, type, and grade of the tumor. It will also depend on whether the tumor is causing problems by pressing on your brain and if it has spread to the CNS.
Surgery is often needed to remove a pineal tumor. Sometimes you may need radiation therapy or chemotherapy after surgery. You'll work with your medical team to decide on the best treatment plan for you.
You may need to have a small plastic tube (shunt) put into your skull to drain extra CSF. It's used to drain CSF from your head. This helps lower the pressure in your head (intracranial pressure) and ease symptoms.
Pineal tumors may be hard to remove with surgery because they're so deeply and centrally located in the brain. In some cases, doctors use a computer to help them focus high-powered radiation on the exact area of the tumor. This is called stereotactic radiosurgery, but no cutting is involved.
After treatment, you will likely need to have regular follow-up MRI scans to watch for signs that the tumor has come back.