Nusinersen is the first medicine approved to treat children and adults with SMA. Nusinersen is injected by spinal tap (lumbar puncture) around the spinal cord.
SMA can’t be cured. So finding it early is important. Treatment may depend on your child’s age, his or her overall health, and the type of SMA he or she has.
Children with SMA may have problems breathing and swallowing. This is because the disease affects the muscles that control these functions. Children with severe cases are especially at risk for these problems. They may need a breathing machine or nutritional care.
Weak arm and leg muscles can make it hard for a child to walk and stand. A wheelchair or walker can help keep a child independent. Physical therapy and exercise can help, too. They can make it easier to move and stay flexible.
Many children with SMA also have scoliosis. Scoliosis is a condition that causes the spine to curve. A healthcare provider may recommend special devices to help prevent this problem. Surgery may be needed to fix it.