Tagged: #lymphangioleiomyomatosis

The Food and Drug Administration (FDA) recently approved the drug sirolimus for the treatment of lymphangioleiomyomatosis (LAM), a rare lung disorder primarily affecting women. The Multicenter International Lymphangioleiomyomatosis Efficacy and Safety of Sirolimus (MILES) trial, spearheaded by investigators at the University of Cincinnati Medical Center Division of Pulmonary, Critical Care & Sleep Medicine and Cincinnati

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Home spirometry is being added as a secondary end point in a lymphangioleiomyomatosis (LAM) trial soon to begin enrollment at the University of Cincinnati (UC) Medical Center. Its inclusion is aimed at helping to assess the feasibility and reliability of performing home spirometry among patients with LAM. “Checking lung function more often will result in

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Lymphangioleiomyomatosis (LAM) is a rare, metastatic neoplasm in women that leads to cystic lung destruction and declining lung function. Until recently, LAM patients faced respiratory disability and the need for supplemental oxygen and lung transplantation without an effective therapy.

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Successful completion of the Multicenter International Lymphangioleiomyomatosis (LAM) Efficacy and Safety of Sirolimus (MILES) trial was critically dependent on communication and collaboration with the LAM patient community, which was made possible through their advocacy group, the LAM Foundation.

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